If you're wondering what the reason why I go after a tonne of travel experiences via this亚博app官方下载 好吧，就是这样！
我是一个长期的primary mediastinal nonseminomatous germ cell tumour survivor.很明显你看到这一页是因为你想找一个在这一页中幸存下来的人极为罕见的癌症,and even though we have the internet at our disposal these days,还是很难找到人。
If you've been diagnosed with this rare cancer,请联系我.
我相信你觉得你是世界上唯一一个经历这一切的人，but believe me,你不是。
I was diagnosed in December 1994.我还在周围烦着大家…….
对，真可怕。在这张X光片的时候，我呼吸困难，肿瘤had pushed out the veins in my chest plus I felt very lethargic.
I was only 21 at the time.我刚刚在昆士兰州北部的汤斯维尔完成了大学学业，but then went straight into the chemo ward for 3 months of high dose chemotherapy from hell.
你会非常熟悉三种化疗药物，它们同时也是你最好的朋友和最坏的敌人——博来霉素，依托泊苷，and cisplatain.也被称为BEP协议。You'll hate every minute of chemotherapy,但别无选择。
I was ‘lucky' enough not to endure the holy trinity of cancer treatments.也就是说，for some inexplicable reason,我不需要后续治疗，如手术和/或放射治疗。
I'm not expecting a flood of emails because of how rare this type of cancer in (my doctor told me this is a 1 in 10 million chance),但我很乐意尽我所能帮助别人。I'll tell you everything that I know.
If you're a support person for someone who has this – that is,家人或朋友，here is my best tip for you – ‘you don't need to understand what they're going through,你只需要在那里'的。
我的家人和朋友给了我难以置信的支持，他们都下了地狱，就像我一样。I call these people ‘my guardian angels' as I'm sure they're the reason I'm still around more than 2 decades later. And what you might think is small and trivial means everything to the person on the receiving end.A simple text,电话，or taking someone out for the day means everything and sends a powerful message that ‘these people want me to stick around'.